Wednesday, March 16, 2011


Well, things are always crazy arent they. Looks like we just lost SSI because of the shirt sales, something with transfering the money from paypal to pay for the order of shirts. But you know, God is providing and I believe we should be set up soon with the Medically Dependant Children Program. We might have lost a couple of hundred bucks a month, but you know looking at all of this. its worth it. and I'm really NOT going to miss dealing with SSI! Do keep us in your prayers as we are trying to transition seamlessly. and dont feel bad, it would have happened anyway when we got our tax refund. its just life. : )
And this is why it's worth it:

Looks like the Spina Bifida Shirts, hoodies, totebags and onesies have raised an amazing 1,000.00 USD!
Pretty amazing if you ask me!!
Congratulations to all of you. I think this is huge. Remember we've spread our message, we've supported our kids and we've given a nice chunk of change to the spina bifida association of central florida!!

I think thats pretty awesome.

And I love seeing Toby with his shirt on. Just today he asked me why he's got to wear leg braces, before I might have avoided the word spina bifida. I might have avoided that title with him, but now its just a word. a word that we are totally completely redefining. So yup, we might have some spina bifida over here at our house, but we are kicking it's butt. : )

love you all and congratulations again. If you hadnt spread the word it wouldnt have been this amazing!


Colleen said...

OMG!!!! That stinks! I know you say it's fine, but I am so sorry. This is why I love and hate government resources. Can't live with em, can't live without em.

The Forest Minstrel said...

Sadly, when the government gets "involved" (i.e. giving us money), they feel they have a "right" to tell us how to live and what to do. I'm sorry you've lost that "couple hundred a month" but I'm glad you're not having to deal with them now (sounds like it was pretty painful, anyway!).
"And whatsoever ye shall ask in my name, that will I do, that the Father may be glorified in the Son.
If ye shall ask any thing in my name, I will do it." John 14:16-14
"Be careful for nothing; but in everything by prayer and supplication with thanksgiving let your requests be made known unto God." Philippeans 4:6
(God gave me those yesterday, I think you need them today :) )

Lacy said...

Seriously?! The system is really messed up but we have to use it anyways. ;( Hope to get on MDCP's been great for us! Praying for your family.