And this is why it's worth it:
Looks like the Spina Bifida Shirts, hoodies, totebags and onesies have raised an amazing 1,000.00 USD!
Pretty amazing if you ask me!!
Congratulations to all of you. I think this is huge. Remember we've spread our message, we've supported our kids and we've given a nice chunk of change to the spina bifida association of central florida!!
I think thats pretty awesome.
And I love seeing Toby with his shirt on. Just today he asked me why he's got to wear leg braces, before I might have avoided the word spina bifida. I might have avoided that title with him, but now its just a word. a word that we are totally completely redefining. So yup, we might have some spina bifida over here at our house, but we are kicking it's butt. : )
love you all and congratulations again. If you hadnt spread the word it wouldnt have been this amazing!
3 comments:
OMG!!!! That stinks! I know you say it's fine, but I am so sorry. This is why I love and hate government resources. Can't live with em, can't live without em.
Sadly, when the government gets "involved" (i.e. giving us money), they feel they have a "right" to tell us how to live and what to do. I'm sorry you've lost that "couple hundred a month" but I'm glad you're not having to deal with them now (sounds like it was pretty painful, anyway!).
"And whatsoever ye shall ask in my name, that will I do, that the Father may be glorified in the Son.
If ye shall ask any thing in my name, I will do it." John 14:16-14
"Be careful for nothing; but in everything by prayer and supplication with thanksgiving let your requests be made known unto God." Philippeans 4:6
(God gave me those yesterday, I think you need them today :) )
Seriously?! The system is really messed up but we have to use it anyways. ;( Hope to get on MDCP soon...it's been great for us! Praying for your family.
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