I had a pretty uneventful pregnancy, at 20 weeks we found out we were having a boy and were so excited. On November 25th 2007 Aidan was born and we were ecstatic. After cleaning him up the nurse practitioner brought him to me and said I have to show you something. She turned my son over and pointed out a raised bump on his back and said I think he has spina bifida. Since his back was closed they waited until morning to take him to the Children's hospital. I was numb, I didn't understand what happened or exactly what it was. After Aidan was sent to the nicu he had multiple tests over the next few days, after the mri the neurosurgeon confirmed he had spina bifida. He was diagnosed with lipomyelomeningocele at the L5 level. His spinal cord grew into a fatty mass covered with skin. We were able to take him home for a week before surgery. His first surgery went well but it took another surgery and 2 months for his back to finally heal. Aidan is now 2 and the most curious and outgoing boy. He has such a determination to do things for himself, it's amazing to watch him learn. He started walking at about 18 months and now never stops. He loves books and cars and helping with whatever we are doing. Finding other moms on the babycenter message board has been the most amazing resource. It's wonderful that I get to celebrate my sons accomplishments with other parents that understand how much our kids can do.
4 comments:
Thank you for sharing your story and your ADORABLE son!
I also want to say "Thank You" for sharing your story. I have only met one other family whose son was born with Lipomyelomenigocele. My daughter was born with it 6 years ago and it has been a lonely journey until I found someone else and we have become dear friends. We learned at Madilyn's birth she had Spina Bifida. But, because she had Malrotation of the Intestines she had to wait till she was 7 months old to have her first spinal surgery. She has had two more since then. I am so happy that your son is doing so well! What a special little one you have! Best Wishes!
Aidan is so cute! Thanks for sharing.
Awesome!
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