The Natural History of Spina Bifida

According to the CDC little is known about what life is like for children who have Spina Bifida and their families. The National Spina Bifida Program housed at the Centers for Disease Control and Prevention (CDC) is sponsoring a pilot program to gain this insightful information. The goals of this project are learn about development, health, learning, medical problems, physical activity, services available, mobility and functioning among children with Spina Bifida.

What an exciting project! I hope that this will be one of those things that help change the attitudes and perspective of life with Spina Bifida.

Just wanted to share this with you all! I am continually inspired by your experiences and efforts to "Redefine Spina Bifida"! Each of our experiences are unique. During this month of "Awareness" may each of us find courage in our journeys. May we find ways to renew our strength and determination to give our children the best of care. Then may we hold up our light and offer hope to those families who find themselves on our path.

Best Wishes,
Madilyn's Mom