Monday, October 11, 2010

Spina Bifida University

(From a publication of the SBA)

"Launching in October 2010, SBU will offer both pre-recorded and live seminars with medical and health care professionals from around the country--all on the topics that are important to you and all at NO COST!"

October 11: Urology
  • Management of the Neurogenic Bladder: Late Childhood to Adulthood
  • Evolution and Management of the Neurogenic Bowel in Spina Bifida

October 18: Aging with Spina Bifida
  • Aging and Adulthood
  • Managing Changes in Later Adulthood

October 25: General Health and Preventative Medicine
  • Proper seating and wheelchair fitting for persons with Spina Bifida
  • Latex Allergy: 2010 Update
  • SOS: Save Our Skin!
  • Motion Analysis for Patient Evaluation and Decision Making

Live sessions will begin in November 2010.
Visit and click the SBU box on the home page for more information.

(The following information is from an email received Monday, October 11, 2010, 9 a.m.)

Did you hear about SB University (SBU)? SBA’s new online educational platform launched last week. SBU offers both live and archived seminars on topics related to Spina Bifida. These can vary from health related seminars with medical professionals to employment or education tips from subject matter experts. The goal is to increase education about topics related to Spina Bifida that are important to our Community.
Sessions are FREE to registered users. Log onto to to register and become a part of a new online learning experience.

NEW this Week – Sessions on Urologic and Bowel Function:

Medical Management of the Neurogenic Bladder: Late Childhood to Adult
Presenters: Rosalia Misseri, MD and Hadley Wood, MD
This session discusses transitional urology, a sub-specialty of urology which focuses on congenital anomalies, and the impact of changes in the bladder on a person (both urological and sexual). Based on issues instead of age, the presenter explains how and when to transition care. The goal of transitional urology is to preserve kidney function while encouraging one to take responsibility for one’s own care as he/she moves into adulthood. The presenter also explains how to use social support systems to navigate the sub-specialties of health care and find the right doctors, the issues to be dealt with during the initial visit, and long-term concerns.

Evaluation and Management of the Neurogenic Bowel in Spina Bifida
Presenter: Kimberly Jarczyk, MSN, APNP
This session aims to illustrate how fecal incontinence can negatively impact health and the quality of life for people with Spina Bifida. During this session, the mechanisms of bowel incontinence and treatment options are described as well as the clinical concerns of poor bowel management. The anatomy of a normal and a neurogenic bowel is explained particularly as it relates to dysfunction as it pertains to lesions above and below T12. The link between constipation, the major problem in bowel incontinence, and bladder function, shunt malfunction, school and social problems, family discord, and financial burdens are also explored.